Edited by Bonnie Leadbeater, Elizabeth Banister, Cecilia Benoit, Mikael Jansson, Anne Marshall, and Ted Riecken of the University of Victoria.

Published in 2006 by the University of Toronto Press, it is available in cloth and paper versions.

DESCRIPTION: Efforts to apply ethical guidelines and regulations to vulnerable populations are often problematic. Consequently, health and social scientists sometimes shy away from the challenges of research, particularly when it means addressing value-laden social problems such as sexuality, drugs, and racism. Ethical Issues in Community-Based Research with Children and Youth is a collection of essays that describe the uniqueness of community-based research, outlining several of the ethical concerns that it engenders. The contributors examine such issues as the scope of informed consent to multiple stakeholders, determining competence to give consent in marginalized populations, and managing dual roles as participant researchers. The collection suggests that a more collaborative, ongoing, and discursive approach is needed by researchers and by ethical review boards to ensure that research on sensitive social problems with high risk populations is supported and also conducted with a clear understanding of the highest ethical standards possible.

TABLE OF CONTENTS

Part I: The Ecology of Informed Consent in Vulnerable Child and Youth Populations and First Nations

• Community-Based Research with Vulnerable Populations: Challenges for Ethics and Research Guidelines
• Through the Community Looking Glass: Participant Consultation for Adolescent Risk Research
• At the Edge of Consent: Participatory Research with Student Filmmakers

Part II: Longitudinal Samples: Protecting Privacy and Maintaining Consent

• A Youth Population Health Survey
• The Ethics of Peeking behind the Fence: Issues Related to Studying Childrens Aggression and Victimization

Part III: Weighing Benefits and Preventing Harms

• The Ecstasy and the Agony of Collecting Sociometric Data in Public School Classrooms: Challenges, Community Concerns, and Pragmatic Solutions
• Ivory Tower Ethics: Potential Conflict between Community Organizations and Agents of the Tri-council

Part IV: The Special Case of Research with Groups

• Youth on the Margins: Qualitative Research with Adolescent Groups
• Walking a Fine Line: Negotiating Dual Roles in a Study with Adolescent Girls

Part V: Child Protection Issues in Research with Vulnerable Children and Youth

• Respect and Protect? Conducting CommunityAcademic Research with Street-Involved Youth
• Conducting Research in Child Maltreatment: Problems and Prospects
• The Study of Suicidality among Children and Youth: Preliminary Recommendations and Best Practices

Part VI: Summary and Recommendations for Ethical Guidelines, Research, and Training

• Unique Roles, Unique Challenges: Graduate Students Involvement in Community-Academic Research
• Stepping into Community-Based Research: Preparing Students to Meet New Ethics and Professional Challenges
• Including Vulnerable Populations in Community-Based Research: New Directions for Ethics Guidelines and Ethics Research